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The Mo Experience
Foundation Inc.

Our Mission

The Mo Experience Foundation Inc. is a non-profit organization that outlines its core purpose and the reason for its existence. our mission serves as a guiding principle that directs the organization's activities and defines the impact it seeks to make in the world. Our mission encapsulates the organization's values, goals, and the specific problem it aims to address or the service it intends to provide.

The Mo Experience Foundation Inc.is a non-profit organization that typically focus with the following elements:

  1. Purpose: The Mo Experience Foundation Inc. aim to focus on providing education, and spreading awareness and advocacy on scleroderma.

  2. Target beneficiaries: Our goal is to serve and identifies the individuals, communities, or groups, such as: children, the elderly, marginalized communities, or it could be a broader population.

  3. Activities or services: The Mo Experience Foundation Inc. specific actions include programs, or services to fulfill our purpose and meet the needs of its target beneficiaries. This may include offering educational programs, conducting research, providing direct services, advocating for policy changes, raising awareness, or any other relevant activities.

  4. Desired impact: The Mo Experience Foundation Inc. articulates the intended positive change. This could be in the form of improving quality of life, promoting social awareness, advancing scientific knowledge, protecting the environment, fostering community development, or addressing a specific issue or challenge on scleroderma.

 

Note: Our mission serves as a compass, guiding the organization's strategic decisions, resource allocation, and day-to-day operations. And also, to helps stakeholders, including staff, volunteers, donors, and the general public, understand the organization's purpose and motivates them to support our work. Furthermore, our compelling mission is to attract like-minded individuals and partners who share the organization's vision and are passionate about its cause, leading to increased collaboration and impact.

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Mo's Story

Hi, I’m Celebrity Chef Monika Hilton. Just a few years ago, I was a competitive chef and a well known cake artist, once competed on Food Network's, Cake Wars and Netflix's, Sugar Rush, with a huge clientele in the southeast area as well as the entertainment industry and I now experience great difficulties when baking and decorating cakes due to the loss of mobility in my hands and not being able to lift, bend, or stand for extended periods of time.  

 

Six years ago, I was diagnosed with an autoimmune disease called Scleroderma meaning (the hardening of the skin) It's a connective tissue disorder that also causes chronic pain, skin tightening, joint stiffness, fatigue, intestinal complications and potentially organs failure. 

Scleroderma has caused deformities in my hands/fingers my arms and severely  limited my mobility. I cannot be in direct sunlight & I'm highly sensitive to extreme hot and cold temperatures. My skin on several parts of my body is shades darker than my face resembling Vitiligo. I wear splints on my teeth because the connective tissues in my mouth are deteriorating causing several teeth to be loose making it very difficult to eat.  My dental hygiene is also suffering because I can't open my mouth more than the width of my thumb therefore, flossing is impossible and brushing is a challenge.

I never heard of this disease until I was diagnosed 6 years ago but since then, I've been researching as much as I can and sharing my journey with the world.  
It has changed my life physically and mentally, briefly, even had me convinced to give up because I was hit with so much at once!  Fortunately, I decided to fight for my life and all the abilities that were stolen from me and share with the world, "The Mo Experience!"

My goal is to spread awareness about this disease and solicit more advocates to become more involved to raise more awareness and money to donate towards a cure for Scleroderma.
I know God is a healer and I am in constant prayer for myself and the other 300,000 plus people this disease is affecting.
My transparency about my journey with Scleroderma was overwhelming at first because of the many changes I've experience and its hard being the only person in the room talking about something people are not that familiar with. 

 

I'm asking you to please help me spread knowledge about this debilitating disease.  There is no cure for Scleroderma but early detection can slow down its progression. Often times the symptoms mimic other autoimmune diseases with muscle or nerve pain, joint stiffness and fatigue but nothing compares to the skin tightening that I am experiencing.
Please share your platform and help me spread awareness by  sharing my story.
https://youtu.be/RbDuceKDbSA
www.Scleroderma.org 
Thank you for your time and consideration. Blessings to you.

Love & Support

Family

Monika & Marvin Hilton have been in business over 20 years and together more than 30 years, married 25., we first serve the Greater Columbia, SC area and now wowing the Atlanta Ga area with "The Mo Experience".  Custom-designed cakes and delicious home cooking is Chef Mo's specialty.. 2022 marks The Hiltons 32 years together through tick and thin. Raising 3 beautiful children and supporting one another throughout their journeys together and individual.

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Spreading Awareness

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Our Purpose

Spreading awareness for scleroderma is important for several reasons

  1. Early detection and diagnosis: Scleroderma is a rare autoimmune disease that affects the connective tissues in the body, leading to hardening and tightening of the skin and other organs. Raising awareness about the symptoms and risk factors of scleroderma can help individuals recognize the signs early on and seek medical attention promptly. Early diagnosis can lead to better treatment outcomes and improved quality of life.

  2. Education and understanding: Many people are unfamiliar with scleroderma and its impact on those affected by the disease. By spreading awareness, we can educate the general public, healthcare professionals, and even those within the medical community about scleroderma. This helps increase understanding, empathy, and support for individuals living with the condition.

  3. Support and resources: Awareness initiatives can help connect individuals with scleroderma to support groups, patient organizations, and resources. These networks can provide crucial emotional support, information, and resources for managing the disease and improving overall well-being.

  4. Research and funding: Increasing awareness can also generate interest in scleroderma research and attract funding for further studies. Advances in scientific understanding and potential treatment options rely on ongoing research efforts. By raising awareness, we can promote the importance of funding and support for scleroderma research, bringing us closer to improved treatments and ultimately a cure.

Overall, spreading awareness for scleroderma is essential for early detection, education, support, and advancing research efforts. It can make a significant difference in the lives of individuals living with the disease and contribute to improving their overall quality of life.

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Testimonials

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Andy Hedley

“Great service throughout the transaction, and very accommodating to the incredibly. Couldn’t ask for more, and to top it off The Mo experience looked fantastic!”
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Margaret Chapman

“ everything from The Mo experience has been absolutely superb."
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Alexa Young, CA

“Whatever we throw at them, The Mo experience consistently delivers to our expectations. Nothing is too much trouble for them.” 
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